As one of the rare people with ‘misplaced heart’ syndrome, Russian girl Virsaviya Borun was predicted to die soon after birth by doctors, but miraculously, she is still healthy.
Virsaviya Borun. Born with rare syndrome In 2017, a 40-second video showing a dramatic scene of a girl’s heart pounding out of her chest caught the attention of many people. The little girl in that amazing video is said to be Virsaviya Borun, from Russia. Despite living with such a disability, Virsaviya loves life very much. In a clip on YouTube, Virsaviya surprised everyone when chatting innocently, making a playful gesture with the heart outside his chest, making many listeners shed tears. Virsaviya is also regularly posted by her mother on Instagram, the latest picture shows the mother and the child in swimsuits. “I like to paint Jesus, foal and angels. I don’t go to school and don’t ballet, but at home I still study and dance. This is the heart, you are the only one with it. When wearing clothes, children undergarment soft so that the heart does not hurt. You go, run, jump. I shouldn’t be able to run, but I like to run, ”she said. Born in 2011, the baby girl Virsaviya Borun suffers from a syndrome of “lost heart” also known as the Pantalogy of Cantrell. This syndrome prevented her ribs and abdominal muscles from being properly formed during her pregnancy. The Pentalogy of Cantrell has varying degrees of severity. Some newborns may have only mild malformations, some more severe can have life-threatening complications.In those cases, the extrasoracic heart is the most common form and are also the most dangerous, accounting for 59% of all heart defects. In practical terms, the only two types of heart that are out of place of clinical significance are the extrasoracic heart and the heart outside the chest-abdomen area. Virsaviya Borun has a rare syndrome called the Pentalogy of Cantrell, meaning “lost heart”. Virsaviya Borun is one of these unlucky ones, because her heart is completely exposed on the outside of her chest and only protected by a very thin skin layer. While it doesn’t cause too much physical pain, it will make her heart appear exposed as it is just below the surface of the skin. According to the doctors, not only the baby’s heart lies outside the chest, but her intestines are also protruding out. The exact cause of the Pentalogy of Cantrell syndrome is currently unknown. Almost all cases are random, for no apparent reason. It is hypothesized that symptoms of the Pentalogy of Cantrell are due to abnormalities in embryonic tissue development during pregnancy. Her phenomenon is extremely rare, only happens with a rate of 1 person per 5.5 million people. According to statistics, only 50 cases of the same disease are known to survive by the age of 12 in the world, the rest of which die a few hours after birth. Virsaviya Borun is with her mother and younger brother. Always love life, not surrender to fate While Virsaviya’s mother Dari was pregnant, she was told that the little daughter in her womb could die during pregnancy or birth. However, despite the difficulties, Virsaviya still lives healthy. “The doctors told me that my daughter could die while I was pregnant or during childbirth. But with what’s going on, I can only say that, Virsaviya is truly a miracle and I love Virsaviya. Virsaviya is unique to me. One of the millions of most special people in the world, ”said Ms. Dari. Her heart is about the size of a hand, always on the outside of her chest. Virsaviya’s family always hoped that she had a body and a normal life like everyone else, so Virsaviya needed several complicated surgeries. Because the cold weather would endanger my health, they moved me to Florida (USA) to live and continue to treat. Currently, I live in Hollywood, 32km from Miami, Florida and quite healthy. Accordingly, in 2015, with the hope of helping Virsaviya to have a normal life like many others, the mother and daughter recently arrived in Boston, but the Boston Children’s Hospital could not operate on Virsaviya because of her aortic blood pressure. baby is too tall. So far Borun’s family has taken their daughter to Hollywood, in the hope that the treatment will lower her blood pressure enough to undergo surgery. After that, Virsaviya’s condition caused her to be hospitalized for a long time. They even said that families should prepare themselves mentally for the worst situation. Having undergone many painful surgeries but Virsaviya Borun is always optimistic and loves life. Borun’s family went to the best pediatric hospitals everywhere. Several hospitals around the world have had to relocate Dari’s daughter to another because of the difficulties and risks that can be encountered if surgery is performed. In early 2020, blood oxygen levels suddenly dropped, causing Virsaviya to experience dizziness and difficulty breathing. Virsaviya was immediately taken to the emergency room and monitored by doctors to ensure complete stabilization of the oxygen intake. Since Virsaviya was born, the doctors told her mother Dari Borun that she would not live long. However, 11 years later, I still live healthy and extremely active, active, like to draw horses and take art classes like normal people. Besides, I also love to run and take dance lessons but Virsaviya’s current state does not allow me to do that. Virsaviya’s mother shared: “It is not easy for Virsaviya to live with such an outside heart because it is too fragile. She can die just from a fall. Virsaviya’s little brother – Ervin is also very fond of approaching and touching his sister’s heart. “Ervin always thought Virsaviya’s heart was something wonderful and beautiful. Ervin especially likes to lie on Virsaviya to feel the pulse of his heart and see the full miracle, ”Dari said. Although Virsaviya knew her situation could take many risks, the little girl never surrendered to fate. “Sometimes I can have some difficulty when the oxygen level in the blood drops, making me dizzy and my health is seriously affected. But I will always try to be able to maintain my life and sing and dance activities with my friends. I really like this. 2020 could be a very boring year for the whole world because of Covid-19’s influence, we were unable to go anywhere or do anything, but I chose to spend more time with my brother and my family. I realize that is really great. Not only that, but I also receive a lot of messages from people who love me on Instagram. They said that I am a strong inspiration, so even though my heart is different, it makes me special and I love it, ”said Virsaviya. The touching story of Virsaviya was first known in 2015 and has spread around the world, shocking everyone about the little girl’s extraordinary vitality. Although her body is not normal, this courageous girl is still very optimistic and loves life. I never thought I was sick but believed that, because God wanted to prove He could do special things, so created me. In the past, Virsaviya’s mother opened a fund to fund her surgery and received about $ 71,000.
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